Marshall-Smith Syndrome Organization of the USA

MSS-USA provides support to the families of individuals diagnosed with Marshall-Smith Syndrome by:

1. Maintaining an online presence through an up-to-date website and activity on various social media platforms,
2. Communicating with the families of patients with Marshall-Smith Syndrome, especially those new to the diagnosis, to help them make connections and navigate the practical aspects of their journey and reduce isolation, and
3. Building strong relationships between families through various outreach projects and regular virtual and in-person family meetup events,
4. Support research projects that improve understanding and increase quality of life for those living with Marshall-Smith Syndrome.