Nora’s Ice Cream Social and Fundraiser

Our daughter, Nora, has SATB2-Associated Syndrome, a rare genetic condition that affects communication, learning, and development. While SATB2 has brought challenges our family never expected, it has also introduced us to an incredible community of families, researchers, therapists, and advocates who have reminded us that no one should face this journey alone.

If you’ve spent any time with Nora, you’ve probably noticed her smile. You may have also noticed that even though she doesn’t communicate with words, she has an amazing way of letting people know they’re loved. She is fiercely loyal to her sisters, protective of her friends, and has a way of bringing joy to the people around her. Nora has changed the way our family sees the world. She has taught us that every person has immeasurable worth, every milestone deserves celebrating, and love doesn’t depend on spoken words.

Each August, we gather for ice cream to celebrate Nora—not because of her diagnosis, but because of the remarkable little girl she is.

This year, we’d like our celebration to bless other families as well.

Rather than collecting donations ourselves, every contribution made through this page goes directly to the SATB2 Gene Foundation. The Foundation supports research, connects families around the world, provides educational resources, and helps improve the lives of individuals living with SATB2-Associated Syndrome. The Foundation has been an incredible source of hope and information for our own family, and we’re grateful for everything it does.

We don’t know what tomorrow holds for Nora. But we do know that every child deserves the opportunity to reach their fullest potential, and every family deserves hope.

Whether you join us for ice cream, make a donation, or simply share this fundraiser, you’re helping create hope for families who are navigating this rare diagnosis today—and for those who will receive it tomorrow.

Thank you kindly for joining us!