SATB2 Associated Syndrome is a rare genetic condition that impacts a very small percentage of individuals. Kids with this condition have significant developmental delays, impaired or absent speech along with other associated symptoms. 

I have a family member who has been diagnosed with this condition. She is smart, cheerful and spreads joy all around.

I want to raise awareness and funds to support medical research associated with this genetic condition. The funds I raise will also be used to support other families with technological and other assistance as needed.

Please support me in this cause. 

Fundraiser for SATB2 Gene Foundation

The SATB2 Gene Foundation enriches the lives of individuals with SATB2-Associated Syndrome through support, research & education.

The SATB2 Gene Foundation works to enrich the lives of individuals with *SATB2-*associated syndrome (SAS), including those diagnosed with the condition and their families through support, research and education by:

- [Providing support to families.](https://satb2gene.org/resources/family-resources/)
- [Supporting research in a wide range of issues related toSATB2-associated syndrome.](https://satb2gene.org/research/)
- [Raising awareness about the characteristics of SATB2-associated syndrome.](https://satb2gene.org/resources/satb2-information-sheet/)

Individuals with mutations or deletions in the SATB2 gene, which plays a crucial role in development, particularly in the brain, bones and cranial structures, have *SAS*. They are generally very kind and happy, with the most beautiful smiles you may have ever seen. However, this syndrome significantly affects all areas of development, including speech (absent speech in most or significantly delayed/affected speech), cognition (intellectual disability), fine motor skills, and gross motor skills. Individuals with *SAS* have palatal abnormalities, including cleft palate and high arched palate, as well as dental issues, including missing adult teeth and/or oversized front teeth. Additional medical issues include sleep issues, low bone density, and as the children get older, significant behavioral issues develop.

Satb2 Gene Foundation Inc

Thanks but a great initiative Ishan. Best wishes. 

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