SATB2 Associated Syndrome is a rare genetic condition that impacts a very small percentage of individuals. Kids with this condition have significant developmental delays, impaired or absent speech along with other associated symptoms. 

I have a family member who has been diagnosed with this condition. She is smart, cheerful and spreads joy all around.

I want to raise awareness and funds to support medical research associated with this genetic condition. The funds I raise will also be used to support other families with technological and other assistance as needed.

Please support me in this cause. 

Fundraiser for SATB2 Gene Foundation

The SATB2 Gene Foundation enriches the lives of individuals with SATB2-Associated Syndrome through support, research & education.

The SATB2 Gene Foundation works to enrich the lives of individuals with *SATB2-*associated syndrome (SAS), including those diagnosed with the condition and their families through support, research and education by:

- [Providing support to families.](https://satb2gene.org/resources/family-resources/)
- [Supporting research in a wide range of issues related toSATB2-associated syndrome.](https://satb2gene.org/research/)
- [Raising awareness about the characteristics of SATB2-associated syndrome.](https://satb2gene.org/resources/satb2-information-sheet/)

Individuals with mutations or deletions in the SATB2 gene, which plays a crucial role in development, particularly in the brain, bones and cranial structures, have *SAS*. They are generally very kind and happy, with the most beautiful smiles you may have ever seen. However, this syndrome significantly affects all areas of development, including speech (absent speech in most or significantly delayed/affected speech), cognition (intellectual disability), fine motor skills, and gross motor skills. Individuals with *SAS* have palatal abnormalities, including cleft palate and high arched palate, as well as dental issues, including missing adult teeth and/or oversized front teeth. Additional medical issues include sleep issues, low bone density, and as the children get older, significant behavioral issues develop.

Satb2 Gene Foundation Inc

1279515062

148788709

1524399316

test

167058366

1873740264

188270313

2052641908

2088874155

We are a nonprofit, so instead of charging fees we rely on the generosity of donors like you.

Choose a donation for Every.org

2140519340

2310049938

2477281247

2551237796

2880853031

2883383521

2899462032

316638097

3323783059

3381177838

338811242

3705164611

3842241318

3934974605

4167807122

506613571

1287028958

1858760411

2104603717

2729980760

2939442496

3440869557

4143568784

671754822

87081813

99361

1014384873

1112422858

153399038

2028390811

220342792

2266630408

2519810400

2539558839

2826465835

2843798242

2898624300

3259439560

339774024

3642494300

3902459442

4250940449

472232120

585491400

641510716

91682487

Fundraiser for SATB2 Gene Foundation

Donors

Satb2 Gene Foundation Inc