My son, Nicholas, was born with a rare form of blindness called Leber's Congenital Amaurosis, or LCA. He has a defect in the RPGRIP1 gene, and is slowly losing what vision he has. He may lose all of it at some point. He just started college and is praying for a cure before he graduates.

Odylia Therapeutics has been working on creating a gene therapy for this particular gene for several years and is closing in on starting clinical trials. They are attempting to raise $140,000 by October 15 so they can get started. I know he is so anxious for treatment and would love to be able to see.

I know things are so tight right now, but every dollar helps. 


LCA Fundraiser

Odylia Therapeutics is a nonprofit biotech working to accelerate the development of treatments for people with rare diseases.

At Odylia, we accelerate therapeutic development for people with rare diseases, changing the way treatments are brought from the lab to the clinic. We strive to bring life altering treatments to people with genetic disease regardless of prevalence or commercial interest. 
Odylia is shifting the paradigm to focus on proven science and removing traditional roadblocks. We work to lower costs, reduce development time, focus research, and continuously drive successful programs towards clinical trials and regulatory approval. Strategic collaborations with patient groups, research labs, and commercial partners facilitate our work to ensure treatments are safe, effective, and ultimately reach patients who need them.

Odylia challenges the traditional approach to drug development through:

1. Lower cost of development
Lower licensing fees to decrease development costs and ensure continued commitment to program success

2. Increase speed of development
Challenge traditional approaches through regulatory engagement

Streamline development through strategic partnerships and a platform approach to drug development

3. Enable the entire ecosystem
Provide expertise through in-house Brydge Solutions and leveraging the Odylia Board

Enable the entire ecosystem through Initiatives that impact the broader field

Odylia Therapeutics

I love my son and always been told by medical field that he will benefit from restoring vision through gene therapy. I want to see that happen for him soon 

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We are a nonprofit, so we rely on the generosity of donors like you.

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LCA Fundraiser

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Odylia Therapeutics