Help Save Dylan’s Vision

Dylan is one of the smartest, wittiest, and happiest 4 year olds you would ever meet. She loves gymnastics, music, learning, skiing, swimming, riding her bike without training wheels, running, Peppa Pig, and reading books in both braille and large print. When Dylan was about 2 months old, we noticed that she had nystagmus. Three months later, through many doctors appointments and genetic testing, we learned that Dylan has Lebers Congenital Amaurosis (LCA). As of now, Dylan has enough functional vision that at close distances she can identify shapes, letters, colors, and familiar faces. Since she is still young, it is unknown at what degree of clarity she can see these things. What we do know, is that LCA is a degenerative condition, meaning Dylan’s vision is likely to deteriorate even further as she gets older. As her parents, we are hopeful that before her vision significantly deteriorates, that a gene therapy treatment will become available to preserve, or possible even improve her vision. The data, research and groundwork are all in place for this to happen. We just need funding to help support Odylia in getting this project to clinical trials. This could be reality in two short years if fundraising goals are met. You could help change the future for Dylan and many others just like her!