MEF2C Family Foundation

Connection

We connect, support, and empower families who have loved ones with MEF2C-related disorders. We are a cooperative and welcoming group of parents that offers peer-to-peer support. By joining our community, we hope families will feel empowered to advocate for their loved ones and prepare themselves for the unique parenting journey that comes with raising a MEF2C child.

Research

We are also advocates for curing this rare disease, and aim to connect clinicians, researchers, and biotech companies with our patient population. We are committed to furthering research and treatments that will have a meaningful impact on our children’s quality of life. We believe we are stronger together, and we are hopeful that we will eventually treat or cure this rare disease.