Cure SMA logo with the word “cure” in purple lowercase letters inside a speech bubble above the letters “SMA” in black.

Cure SMA

Our mission is to drive research for treatments and a cure for SMA, and to support and empower everyone impacted by SMA today.

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Cure SMA leads the way to a world without spinal muscular atrophy. We fund and direct comprehensive research that drives breakthroughs in treatment and care, and we provide individuals with SMA and their families the support they need for today.

Spinal muscular atrophy (SMA) is a progressive neurodegenerative disease that affects the motor nerve cells in the spinal cord and impacts the muscles used for activities such as breathing, eating, crawling, and walking. Each year, thousands of infants in the U.S. and around the world are born with SMA. SMA also impacts children, teens, and adults from every background, race, and gender. Approximately one in 50 people, more than six million total, is a genetic carrier for SMA. There are several approved treatments for SMA, but we do not yet have a cure. 

Schaumburg, IL
Mid-sized organization
curesma.org
A 501(c)(3) nonprofit, EIN 36-3320440

Fundraisers

Feed fundraiser card link to SMA Awareness Project
Cure SMA logo with the word “cure” in purple lowercase letters inside a speech bubble above the letters “SMA” in black.
Fundraiser by aahana rao

SMA Awareness Project

Spinal Muscular Atrophy (SMA) is a rare genetic disease that weakens muscles and can take away a child’s ability to move, breathe, and live independently. Watching my family struggle with SMA, Ive seen how deeply psychologically and financially it affects an individual and their loved ones. While treatments exist, they are extremely expensive and not accessible to everyone. Early diagnosis and support can completely change outcomes, but awareness is still too low. I created this project to help contribute to changing that. This website is dedicated to educating others about SMA and turning awareness into real impact. Every donation made through this page goes directly to Cure SMA and helps fund research, support families, and expand access to life changing treatments. This fundraiser also allows me to track the real-world impact of this awareness effort, showing how education can lead to meaningful change. Watching my family scrape every penny to pay for treatment, I can assure you that even a small contribution can make a very large difference.
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Donors

  • Amber Ewert Snyder

    Thanks, Cure SMA!

    1