Our family continues to raise awareness and fundraise for SATB2 Associated Syndrome. We do so in honor of our beautiful boy Luke and all the wonderful individuals impacted by SAS. 

SATB2 associated syndrome is a rare genetic condition that affects speech, development, and many aspects of daily life. For families like ours, the challenges are real every single day—but so is the hope that research can change the future.

Things that come easily to most children, require a lot more time, effort, exposure, and professional guidance. Although he faces many challenges throughout his day, Luke continues to be an inspiration to US. I proudly say, he is the hardest working guy in the room. At just 5 years old! Teaching his baby sister sign language, attending school year round, therapy sessions - all while having the most amazing personality. 

He has given our life such purpose and continues to amaze us every day! 

We have been incredibly blessed with the amount of love and support we have received this far. Every donation is truly appreciated. Your contribution helps move the science forward, provides family support, and much more.

SATB2 awareness day is just a few days away. Please us reach our goal. And don’t forget to send us a picture in your “team lukey“ gear if you made a purchase!

Thank you again from the bottom of our hearts! 

Team Lukey 2026 SATB2 Awareness Day Fundraiser 

The SATB2 Gene Foundation enriches the lives of individuals with SATB2-Associated Syndrome through support, research & education.

The SATB2 Gene Foundation works to enrich the lives of individuals with *SATB2-*associated syndrome (SAS), including those diagnosed with the condition and their families through support, research and education by:

- [Providing support to families.](https://satb2gene.org/resources/family-resources/)
- [Supporting research in a wide range of issues related toSATB2-associated syndrome.](https://satb2gene.org/research/)
- [Raising awareness about the characteristics of SATB2-associated syndrome.](https://satb2gene.org/resources/satb2-information-sheet/)

Individuals with mutations or deletions in the SATB2 gene, which plays a crucial role in development, particularly in the brain, bones and cranial structures, have *SAS*. They are generally very kind and happy, with the most beautiful smiles you may have ever seen. However, this syndrome significantly affects all areas of development, including speech (absent speech in most or significantly delayed/affected speech), cognition (intellectual disability), fine motor skills, and gross motor skills. Individuals with *SAS* have palatal abnormalities, including cleft palate and high arched palate, as well as dental issues, including missing adult teeth and/or oversized front teeth. Additional medical issues include sleep issues, low bone density, and as the children get older, significant behavioral issues develop.

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