"Because the cost of doing nothing is too great" is an axiom that defines our mission and directs all of debra of America's actions as an organization. We are dedicated to improving the quality of life for all those living with Epidermolysis Bullosa (EB) in the United States. To achieve this, we do two things in parallel: we develop and execute programs with free services for the EB Community and fund the most innovative research directed at symptom relief and a systemic cure. Visa mer
1 supporter
New York, NY
Small organization