They are doing phenomenal work. I recently attended their conference in Morristown NJ and was amazed by the sheer passion they demonstrate in bringing the experts, patients and companies together and transformation they are driving for changing the laws in different states to have CoE (Center of Excellence) for HCM patients 

1.Improve the lives of those with Hypertrophic Cardiomyopathy  2.Prevent untimely deaths  3.Advance global understanding  4.To help Support one another

Please contact the Hypertrophic Cardiomyopathy Association at 973-983-7429 with any questions you have regarding hypertrophic cardiomyopathy.  We are available to help you navigate the options available to you and your family. http://www.4hcm.org

Hypertrophic Cardiomyopathy Association

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Hypertrophic Cardiomyopathy Association