Dylan is one of the smartest, wittiest, and happiest 4 year olds you would ever meet. She loves gymnastics, music, learning, skiing, swimming, riding her bike without training wheels, running, Peppa Pig, and reading books in both braille and large print. When Dylan was about 2 months old, we noticed that she had nystagmus. Three months later, through many doctors appointments and genetic testing, we learned that Dylan has Lebers Congenital Amaurosis (LCA). As of now, Dylan has enough functional vision that at close distances she can identify shapes, letters, colors, and familiar faces. Since she is still young, it is unknown at what degree of clarity she can see these things. What we do know, is that LCA is a degenerative condition, meaning Dylan’s vision is likely to deteriorate even further as she gets older. As her parents, we are hopeful that before her vision significantly deteriorates, that a gene therapy treatment will become available to preserve, or possible even improve her vision. The data, research and groundwork are all in place for this to happen. We just need funding to help support Odylia in getting this project to clinical trials. This could be reality in two short years if fundraising goals are met. You could help change the future for Dylan and many others just like her!

Help Save Dylan’s Vision

Odylia Therapeutics is a nonprofit biotech working to accelerate the development of treatments for people with rare diseases.

At Odylia, we accelerate therapeutic development for people with rare diseases, changing the way treatments are brought from the lab to the clinic. We strive to bring life altering treatments to people with genetic disease regardless of prevalence or commercial interest. 
Odylia is shifting the paradigm to focus on proven science and removing traditional roadblocks. We work to lower costs, reduce development time, focus research, and continuously drive successful programs towards clinical trials and regulatory approval. Strategic collaborations with patient groups, research labs, and commercial partners facilitate our work to ensure treatments are safe, effective, and ultimately reach patients who need them.

Odylia challenges the traditional approach to drug development through:

1. Lower cost of development
Lower licensing fees to decrease development costs and ensure continued commitment to program success

2. Increase speed of development
Challenge traditional approaches through regulatory engagement

Streamline development through strategic partnerships and a platform approach to drug development

3. Enable the entire ecosystem
Provide expertise through in-house Brydge Solutions and leveraging the Odylia Board

Enable the entire ecosystem through Initiatives that impact the broader field

Odylia Therapeutics

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Join Melissa to support Odylia Therapeutics

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Odylia Therapeutics