I admire all the work Jen has done for the online community, and she is a force to be reckoned with. Therefore I can only assume she was raised by individuals who also are a source of her inspiration and power. I know it isn’t much but I hope it can help on some way. happy birthday Jen. sending well wishes to your father and family. 

The Multiple System Atrophy Coalition offers support, education, research funding, advocacy and awareness to the MSA community.

The Multiple System Atrophy (MSA) Coalition® is a positive beacon of hope standing up to a little known, rare, insidious disorder.   Since 1989, the MSA Coalition has been devoted to improving the quality of life and building hope for people affected by multiple system atrophy by focusing on a four-pillar mission:  - Providing patients and caregivers with trusted and compassionate emotional support - Educating patients, care-partners and healthcare professionals with credible, critically important and relevant information - Funding patient-centric collaborative research aimed at alleviating symptoms, slowing disease progression and discovering a cure -  Building a sense of community by connecting and unifying people affected by MSA  The MSA Coalition® is the premiere US nonprofit organization dedicated to support, education, research and advocacy for this devastating neurological disease. Thousands of participants benefit from the annual MSA Coalition Family Conference, which is live streamed and posted online. With multiple online discussion groups and a dedicated support line, someone is always there to help. As the host of the first-ever Global MSA Advocacy meeting, the MSA Coalition works with other like-minded charities to foster a community of support and care. As the leading nonprofit funder of global multiple system atrophy research, the MSA Coalition has a proven track record of catalyzing research collaborations, and with the advice of our world renowned Scientific Advisory Board, selecting and funding the most promising research efforts around the world. As of 2019, $1.7 Million has been granted to 36 MSA research projects at 20 research institutions.  Learn more at http://www.multiplesystematrophy.org/ or call our support hotline tollfree 866-737-5999